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Kos, Renate; Goutaki, Myrofora; Kobbernagel, Helene E; Rubbo, Bruna; Shoemark, Amelia; Aliberti, Stefano; Altenburg, Josje; Anagnostopoulou, Pinelopi; Athanazio, Rodrigo A; Beydon, Nicole; Dell, Sharon D; Emiralioglu, Nagehan; Ferkol, Thomas W; Loebinger, Michael R; Lorent, Natalie; Maître, Bernard; Marthin, June; Morgan, Lucy C; Nielsen, Kim G; Ringshausen, Felix C; ... (2024). A BEAT-PCD consensus statement: a core outcome set for pulmonary disease interventions in primary ciliary dyskinesia. ERJ Open Research, 10(1), 00115-2023. European Respiratory Society 10.1183/23120541.00115-2023
Alexandru, Mihaela; Veil, Raphaël; Rubbo, Bruna; Goutaki, Myrofora; Kim, Sookyung; Lam, Yin Ting; Nevoux, Jérôme; Lucas, Jane S; Papon, Jean-François (2023). Ear and upper airway clinical outcome measures for use in primary ciliary dyskinesia research: a scoping review. European respiratory review, 32(169), p. 220200. European Respiratory Society 10.1183/16000617.0200-2022
Gahleitner, Florian; Thompson, James; Jackson, Claire L; Hueppe, Jana F; Behan, Laura; Dehlink, Eleonora; Goutaki, Myrofora; Halbeisen, Florian; Queiroz, Ana Paula L; Thouvenin, Guillaume; Kuehni, Claudia E.; Latzin, Philipp; Lucas, Jane S; Rubbo, Bruna (2021). Lower airway clinical outcome measures for use in primary ciliary dyskinesia research: a scoping review. ERJ Open Research, 7(4), 00320-2021. European Respiratory Society 10.1183/23120541.00320-2021
Gardner, Laura E.; Horton, Katie L.; Shoemark, Amelia; Lucas, Jane S.; Nielsen, Kim G.; Kobbernagel, Helene; Rubbo, Bruna; Hirst, Robert A.; Kouis, Panayiotis; Ullmann, Nicola; Reula, Ana; Rumman, Nisreen; Mitchison, Hannah M.; Pinto, Andreia; Richardson, Charlotte; Schmidt, Anne; Thompson, James; Gaupmann, René; Dabrowski, Maciej; Mill, Pleasantine; ... (2020). Proceedings of the 4th BEAT-PCD Conference and 5th PCD Training School [meeting report]. BMC Proceedings, 14(S8), p. 7. BioMed Central 10.1186/s12919-020-00191-3
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S.; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; ... (2020). Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD. ERJ Open Research, 6(1), 00237-2019. European Respiratory Society 10.1183/23120541.00237-2019
Nenna, Raffaella; Hunt, Katie A; Dassios, Theodore; Collins, Jennifer J P; Rottier, Robbert J; Liu, Norrice M; Rottier, Bart; Goutaki, Myrofora; Karadag, Bülent; Prayle, Andrew; Fernandes, Ricardo M; Parisi, Giuseppe Fabio; Barben, Jürg; Rubbo, Bruna; Snijders, Deborah; Makrinioti, Heidi; Hall, Graham; Pijnenburg, Mariëlle W; Grigg, Jonathan (2019). Key paediatric messages from the 2018 European Respiratory Society International Congress. ERJ Open Research, 5(2), pii: 00241-2018. European Respiratory Society 10.1183/23120541.00241-2018
Farley, Hannah; Rubbo, Bruna; Bukowy-Bieryllo, Zuzanna; Fassad, Mahmoud; Goutaki, Myrofora; Harman, Katharine; Hogg, Claire; Kuehni, Claudia E; Lopes, Susana; Nielsen, Kim G; Norris, Dominic P; Reula, Ana; Rumman, Nisreen; Shoemark, Amelia; Wilkins, Hannah; Wisse, Agatha; Lucas, Jane S; Marthin, June K (2018). Proceedings of the 3rd BEAT-PCD Conference and 4th PCD Training School. BMC Proceedings, 12(Suppl 16), p. 64. BioMed Central 10.1186/s12919-018-0161-6
Halbeisen, Florian; Hogg, Claire; Alanin, Mikkel C.; Bukowy-Bieryllo, Zuzanna; Dasi, Francisco; Duncan, Julie; Friend, Amanda; Goutaki, Myrofora; Jackson, Claire; Keenan, Victoria; Harris, Amanda; Hirst, Robert A.; Latzin, Philipp; Marsh, Gemma; Nielsen, Kim; Norris, Dominic; Pellicer, Daniel; Reula, Ana; Rubbo, Bruna; Rumman, Nisreen; ... (2018). Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1. BMC Proceedings, 12(Suppl 2), p. 1. BioMed Central 10.1186/s12919-018-0098-9
Rubbo, Bruna; Behan, Laura; Dehlink, Eleonora; Goutaki, Myrofora; Hogg, Claire; Kouis, Panayiotis; Kuehni, Claudia E; Latzin, Philipp; Nielsen, Kim; Norris, Dominic; Nyilas, Sylvia; Price, Mareike; Lucas, Jane S. (2016). Proceedings of the COST action BM1407 inaugural conference BEAT-PCD: translational research in primary ciliary dyskinesia - bench, bedside, and population perspectives. BMC Proceedings, 10(S9), p. 66. BioMed Central 10.1186/s12919-016-0067-0
Rubbo, Bruna; Goutaki, Myrofora; Lucas, Jane S. (2021). Primary ciliary dyskinesia. In: Eber, Ernst; Midulla, Fabio (eds.) ERS handbook of paediatric respiratory medicine (pp. 569-578). The European Respiratory Society 10.1183/9781849841313.008119
