Fertility Preservation in Young Female Cancer Patients: Development and Pilot Testing of an Online Decision Aid.

Ehrbar, Verena; Urech, Corinne; Rochlitz, Christoph; Zanetti Dällenbach, Rosanna; Moffat, Rebecca; Stiller, Ruth; Fäh, Monika; von Wolff, Michael; Nawroth, Frank; Dangel, Astrid; Germeyer, Ariane; Findeklee, Sebastian; Tschudin, Sibil (2018). Fertility Preservation in Young Female Cancer Patients: Development and Pilot Testing of an Online Decision Aid. Journal of Adolescent and Young Adult Oncology, 7(1), pp. 30-36. Mary Ann Liebert 10.1089/jayao.2017.0047

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PURPOSE Impairment of fertility is a common sequela of successful cancer treatment. Therefore, fertility preservation (FP) should be discussed with all young cancer patients. Decisions about FP are challenging. Patients wish more specific support and the first results concerning the helpfulness of decision aids (DA) were promising. Aside from describing the process of development and the content of an online DA in German, the objective of this study was to pilot test users' satisfaction with the DA and its effect on knowledge about FP and decisional conflict (DC). METHODS In this prospective consecutive study, a control group (n = 20, fertility counseling) was followed by and compared with an intervention group (n = 20, counseling and additional use of the DA, developed by an interdisciplinary team) of recently diagnosed female cancer patients between 18 and 40 years. RESULTS Nearly all participants who applied the DA considered it helpful for decision-making and recommendable. Knowledge about FP was high with regard to FP techniques women went for. DC was moderate according to the mean score (M = 27.92, standard deviation = 13.27) and only in 20%, the score was above the threshold for high DC. There was no difference between the control and intervention group for knowledge and DC. CONCLUSION The DA seems to serve as additional and well-accepted support tool in decision-making for patients and professionals. Referral to a reproductive specialist is crucial to warrant comprehensive information. These results need to be confirmed with the current ongoing randomized controlled study.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Gynaecology

UniBE Contributor:

Fäh, Monika and von Wolff, Michael

Subjects:

600 Technology > 610 Medicine & health

ISSN:

2156-5333

Publisher:

Mary Ann Liebert

Language:

English

Submitter:

Monika Zehr

Date Deposited:

16 Apr 2018 16:01

Last Modified:

05 Jul 2018 12:30

Publisher DOI:

10.1089/jayao.2017.0047

PubMed ID:

28759303

Uncontrolled Keywords:

decision aid decisional conflict fertility preservation oncofertility online

BORIS DOI:

10.7892/boris.111191

URI:

https://boris.unibe.ch/id/eprint/111191

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