Economic and care considerations of Marfan syndrome

Blankart, Carl Rudolf Berchtold; Milstein, Ricarda; Rybczynski, Meike; Schüler, Helke; von Kodolitsch, Yskert (2016). Economic and care considerations of Marfan syndrome. Expert review of pharmacoeconomics & outcomes research, 16(5), pp. 591-598. Taylor & Francis 10.1080/14737167.2016.1240619

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INTRODUCTION Marfan syndrome is a rare multisystem disease of the connective tissue, which affects multiple organ systems. advances in healthcare have doubled the life-expectancy of patients over the past three decades. to date, there is no comprehensive review that consolidates economic considerations and care for marfan patients. Areas covered: Present research suggests that there may be a link between treatment pattern, disease progression and economic costs of Marfan syndrome. It indicates that an early detection of the disease and preventive interventions achieve a dual aim. From a patient perspective, it may reduce the amount of emergency surgery or intervention, and inpatient stays. In addition, it slows disease progression, lowers lifestyle restrictions, reduces psychological stress, and improves health-related quality of life. Expert commentary: Early detection and preventive measures are likely to achieve a dual aim by simultaneously containing costs and reducing the number and length of inpatient stays.

Item Type:

Journal Article (Original Article)

Division/Institute:

11 Centers of Competence > Center of Comptetence for Public Management (KPM)

UniBE Contributor:

Blankart, Carl Rudolf Berchtold

Subjects:

300 Social sciences, sociology & anthropology > 350 Public administration & military science
300 Social sciences, sociology & anthropology > 330 Economics

ISSN:

1744-8379

Publisher:

Taylor & Francis

Language:

English

Submitter:

Carl Rudolf Berchtold Blankart

Date Deposited:

05 Apr 2018 17:26

Last Modified:

05 Apr 2018 17:26

Publisher DOI:

10.1080/14737167.2016.1240619

PubMed ID:

27662508

Uncontrolled Keywords:

FBN1 Loeys-Dietz syndrome Marfan syndrome TGFBR2 costs decision-making economy gene healthcare surgery

URI:

https://boris.unibe.ch/id/eprint/111994

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