Kamm, Christian Philipp; Barin, L; Gobbi, C; Pot, C.; Calabrese, P; Salmen, Anke; Achtnichts, L; Kesselring, J; Puhan, M A; von Wyl, V. (2020). Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study. Journal of neurology, 267(1), pp. 153-161. Springer-Medizin-Verlag 10.1007/s00415-019-09563-y
|
Text
Kamm2019_Article_FactorsInfluencingPatientSatis.pdf - Published Version Available under License Publisher holds Copyright. Download (875kB) | Preview |
BACKGROUND
Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching.
OBJECTIVE
To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing.
METHODS
Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.
RESULTS
386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%).
CONCLUSIONS
A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
Item Type: |
Journal Article (Original Article) |
|---|---|
Division/Institute: |
04 Faculty of Medicine > Department of Head Organs and Neurology (DKNS) > Clinic of Neurology 04 Faculty of Medicine > Pre-clinic Human Medicine > Theodor Kocher Institute |
UniBE Contributor: |
Kamm, Christian Philipp, Salmen, Anke |
Subjects: |
600 Technology > 610 Medicine & health 300 Social sciences, sociology & anthropology > 360 Social problems & social services |
ISSN: |
0340-5354 |
Publisher: |
Springer-Medizin-Verlag |
Language: |
English |
Submitter: |
Ursula Zingg-Zünd |
Date Deposited: |
20 Nov 2019 17:13 |
Last Modified: |
10 Oct 2023 00:25 |
Publisher DOI: |
10.1007/s00415-019-09563-y |
PubMed ID: |
31595377 |
Additional Information: |
Britta Engelhardt, Direktorin des Theodor Kocher Instituts ist Miglied und Board Member der Schweiz. Multiple Sclerosis Gesellschaft. |
Uncontrolled Keywords: |
Diagnosis communication First diagnostic consultation Multiple sclerosis Patient satisfaction Registries Shared decision making |
BORIS DOI: |
10.7892/boris.134674 |
URI: |
https://boris.unibe.ch/id/eprint/134674 |
Actions (login required)
 |
Edit item |