Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.

Kamm, Christian Philipp; Barin, L; Gobbi, C; Pot, C.; Calabrese, P; Salmen, Anke; Achtnichts, L; Kesselring, J; Puhan, M A; von Wyl, V. (2020). Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study. Journal of neurology, 267(1), pp. 153-161. Springer-Medizin-Verlag 10.1007/s00415-019-09563-y

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BACKGROUND Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching. OBJECTIVE To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing. METHODS Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors. RESULTS 386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%). CONCLUSIONS A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.

Item Type:

Journal Article (Original Article)


04 Faculty of Medicine > Department of Head Organs and Neurology (DKNS) > Clinic of Neurology
04 Faculty of Medicine > Pre-clinic Human Medicine > Theodor Kocher Institute

UniBE Contributor:

Kamm, Christian Philipp and Salmen, Anke


600 Technology > 610 Medicine & health
300 Social sciences, sociology & anthropology > 360 Social problems & social services








Ursula Zingg-Zünd

Date Deposited:

20 Nov 2019 17:13

Last Modified:

14 Jan 2020 01:32

Publisher DOI:


PubMed ID:


Additional Information:

Britta Engelhardt, Direktorin des Theodor Kocher Instituts ist Miglied und Board Member der Schweiz. Multiple Sclerosis Gesellschaft.

Uncontrolled Keywords:

Diagnosis communication First diagnostic consultation Multiple sclerosis Patient satisfaction Registries Shared decision making





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