A Swiss database and biobank to better understand and manage congenital lung anomalies

Vidal, Isabelle; Wildhaber, Barabara E.; Moehrlen, Ueli; Regamey, Nicolas; Trachsel, Daniel; Cholewa, Dietmar; Barben, Juerg; Barazzone-Argiroffo, Constance; Ruchonnet-Mtrailler, Isabelle (2019). A Swiss database and biobank to better understand and manage congenital lung anomalies. Swiss medical weekly, 149, w20081. EMH Media 10.4414/smw.2019.20081

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Congenital lung anomalies are a group of rare malformations, often diagnosed during the prenatal period. Guidelines on how to manage these patients are currently under debate, especially with regard to prophylactic surgery in asymptomatic patients, or how to proceed with conservative follow-up. Currently, there is no clear consensus on management strategies. A Swiss congenital lung anomaly national database and biobank was created in 2016 to enable data recording and collection of surgical lung samples in order to help define the most appropriate management strategies. This national observational cohort study represents an important step towards a better understanding of the pathophysiology and clinical course of the diseases included under congenital lung anomalies, especially in the context of a small country like Switzerland.

Item Type:

Journal Article (Review Article)

Division/Institute:

04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Paediatric Surgery

UniBE Contributor:

Cholewa, Dietmar

Subjects:

600 Technology > 610 Medicine & health

ISSN:

1424-3997

Publisher:

EMH Media

Language:

English

Submitter:

Christoph Steffen

Date Deposited:

03 Dec 2019 13:21

Last Modified:

08 Dec 2019 02:46

Publisher DOI:

10.4414/smw.2019.20081

PubMed ID:

31256411

BORIS DOI:

10.7892/boris.135428

URI:

https://boris.unibe.ch/id/eprint/135428

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