Using the Term "Palliative Care": International Survey of How Palliative Care Researchers and Academics Perceive the Term "Palliative Care".

Zambrano, Sofia C.; Centeno, Carlos; Larkin, Philip J; Eychmüller, Steffen (2020). Using the Term "Palliative Care": International Survey of How Palliative Care Researchers and Academics Perceive the Term "Palliative Care". Journal of palliative medicine, 23(2), pp. 184-191. Liebert 10.1089/jpm.2019.0068

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Background: The term "palliative care" (PC) has often been found to have a negative connotation leading some to suggest rebranding and some services to change their name. Perceptions of the PC community about the term remain largely unexplored. Objective: To explore how PC researchers/academics perceive the term is the objective of this study. Design: This is a cross-sectional survey of attendees to the 10th World Research Congress of the EAPC. The questionnaire covered areas of academic activity, including the use of the term. We analyzed data through descriptive and nonparametric statistics and open responses through content analysis. Participants: Academics and researchers in PC were the participants in this study. Results: Of 318 respondents, the majority were women (65%), physicians (48%), and had a postgraduate degree (90%). For 40%, the term hindered the positioning of PC, 28% worried about using the term, and 55% did not discuss these difficulties. We found significant differences between responses and several demographics (e.g., younger age and higher likelihood of worrying about the term). Through open responses, we identified that the term is widely in use, and that its limitations are seen as a cultural by-product, and not as something that a name change would solve. Conclusions: Senior PC academics, researchers, and clinicians have an onus to ensure that colleagues with limited PC experience have the opportunity to discuss and explore the impact of the term on the practice of research. Regarding the term itself, the community's views are conclusive: although using the term will remain a difficult task, the field's identity is in the name.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Medical Oncology
04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Radiation Oncology

UniBE Contributor:

Zambrano Ramos, Sofia Carolina and Eychmüller, Steffen

Subjects:

600 Technology > 610 Medicine & health

ISSN:

1557-7740

Publisher:

Liebert

Language:

English

Submitter:

Rebeka Gerber

Date Deposited:

17 Dec 2019 12:47

Last Modified:

07 Feb 2020 01:32

Publisher DOI:

10.1089/jpm.2019.0068

PubMed ID:

31414926

Uncontrolled Keywords:

attitude of health personnel cross-sectional studies health care providers perception surveys and questionnaires terminology as topic

BORIS DOI:

10.7892/boris.136278

URI:

https://boris.unibe.ch/id/eprint/136278

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