Examining information-seeking behavior in genetic testing for cancer predisposition: A qualitative interview study.

Zimmermann, Bettina M; Fanderl, Julia; Koné, Insa; Rabaglio, Manuela; Bürki, Nicole; Shaw, David; Elger, Bernice (2021). Examining information-seeking behavior in genetic testing for cancer predisposition: A qualitative interview study. Patient education and counseling, 104(2), pp. 257-264. Elsevier Ireland 10.1016/j.pec.2020.09.019

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OBJECTIVE

This study aims to assess information needs and information sources and seeks to illustrate what at-risk individuals consider motivators of and barriers to information-seeking before and after genetic testing for cancer predisposition.

METHODS

Semi-structured interviews with people seeking genetic counseling in Switzerland were analyzed qualitatively using thematic analysis. Wilson's model of information behavior was the theoretical framework.

RESULTS

We identified four themes that illustrate motivators of and barriers to information-seeking: attitudes and emotions; knowledge; social environment; and demographic factors. We also elucidated information needs and collected participants' information sources.

CONCLUSION

This study£s empirical approach helps healthcare professionals to understand their patients' behaviors and wishes concerning information-seeking more concretely than theoretical models alone. The study also identifies information gaps, especially outside the genetic counseling setting.

PRACTICE IMPLICATIONS

Genetic counselors and other healthcare professionals need to purposefully assist patients in finding trustworthy and accessible information. Healthcare professionals in all disciplines need to be educated about predictive genetic testing.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Medical Oncology

UniBE Contributor:

Rabaglio, Manuela

Subjects:

600 Technology > 610 Medicine & health

ISSN:

0738-3991

Publisher:

Elsevier Ireland

Language:

English

Submitter:

Rebeka Gerber

Date Deposited:

30 Dec 2020 13:11

Last Modified:

02 Feb 2021 01:33

Publisher DOI:

10.1016/j.pec.2020.09.019

PubMed ID:

32988685

Uncontrolled Keywords:

BRCA Cancer predisposition Genetic testing Health communication Information-seeking behavior

BORIS DOI:

10.48350/149330

URI:

https://boris.unibe.ch/id/eprint/149330

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