Living with secondary progressive multiple sclerosis in Europe: perspectives of multiple stakeholders.

Torkildsen, Øivind; Linker, Ralf A; Sesmero, Jose Mm; Fantaccini, Simone; Sanchez-de, la Rosa Rainel; Seze, Jerome de; Duddy, Martin; Chan, Andrew (2021). Living with secondary progressive multiple sclerosis in Europe: perspectives of multiple stakeholders. Neurodegenerative disease management, 11(1), pp. 9-19. Future Medicine 10.2217/nmt-2020-0054

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The transition from relapsing-remitting multiple sclerosis to secondary progressive multiple sclerosis (SPMS) remains a clinical challenge owing to the heterogeneous course of the disease, indistinct disease progression and lack of availability of validated biomarkers and diagnostic tools. This article summarizes the outcomes from an international expert group meeting conducted to validate the preliminary research findings gathered through interviews with primary healthcare stakeholders and pharmaceutical representatives, and to understand the current and future patient journey of SPMS across seven European countries. We highlight the uncertainty in SPMS diagnosis and management and, consequently, the need for uniform assessment guidelines, enhanced awareness and a collaborative effort between the stakeholders associated with SPMS patient care and the pharmaceutical industry.

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