Living with secondary progressive multiple sclerosis in Europe: perspectives of multiple stakeholders.

Torkildsen, Øivind; Linker, Ralf A; Sesmero, Jose Mm; Fantaccini, Simone; Sanchez-de, la Rosa Rainel; Seze, Jerome de; Duddy, Martin; Chan, Andrew (2021). Living with secondary progressive multiple sclerosis in Europe: perspectives of multiple stakeholders. Neurodegenerative disease management, 11(1), pp. 9-19. Future Medicine 10.2217/nmt-2020-0054

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The transition from relapsing-remitting multiple sclerosis to secondary progressive multiple sclerosis (SPMS) remains a clinical challenge owing to the heterogeneous course of the disease, indistinct disease progression and lack of availability of validated biomarkers and diagnostic tools. This article summarizes the outcomes from an international expert group meeting conducted to validate the preliminary research findings gathered through interviews with primary healthcare stakeholders and pharmaceutical representatives, and to understand the current and future patient journey of SPMS across seven European countries. We highlight the uncertainty in SPMS diagnosis and management and, consequently, the need for uniform assessment guidelines, enhanced awareness and a collaborative effort between the stakeholders associated with SPMS patient care and the pharmaceutical industry.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Head Organs and Neurology (DKNS) > Clinic of Neurology

UniBE Contributor:

Chan, Andrew Hao-Kuang

Subjects:

600 Technology > 610 Medicine & health

ISSN:

1758-2024

Publisher:

Future Medicine

Language:

English

Submitter:

Chantal Kottler

Date Deposited:

11 Feb 2021 09:15

Last Modified:

11 Feb 2021 09:15

Publisher DOI:

10.2217/nmt-2020-0054

PubMed ID:

33234006

Uncontrolled Keywords:

diagnosis disease management disease-modifying therapy neurologists nurses secondary progressive multiple sclerosis

BORIS DOI:

10.48350/149343

URI:

https://boris.unibe.ch/id/eprint/149343

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