COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia.

Pedersen, Eva S. L.; Mallet, Maria Christina; Lam, Yin Ting; Bellu, Sara; Cizeau, Isabelle; Copeland, Fiona; Fernandez, Trini Lopez; Manion, Michele; Harris, Amanda L.; Lucas, Jane S.; Santamaria, Francesca; Goutaki, Myrofora; Kuehni, Claudia E. (2021). COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia. Vaccines, 9(12), p. 1496. MDPI 10.3390/vaccines9121496

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Primary ciliary dyskinesia (PCD) is a rare genetic disease that causes recurrent respiratory infections. People with PCD may be at higher risk of severe coronavirus disease 2019 (COVID-19), and therefore vaccination against severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is important. We studied vaccination willingness, speed of vaccination uptake, side effects, and changes in social contact behaviour after vaccination in people with PCD. We used data from COVID-PCD, an international participatory cohort study. A COVID-19 vaccination questionnaire was emailed to participants in May 2021 and 423 participants from 31 countries replied (median age: 30 years, range 1–85 years; 261 (62%) female). Vaccination uptake and willingness were high, with 273 of 287 adults (96%) being vaccinated or willing to be in June 2021; only 4% were hesitant. The most common reason for hesitancy was fear of side effects, reported by 88%. Mild side effects were common, but no participant reported severe side effects. Half of the participants changed their social behaviour after vaccination by seeing friends and family more often. The high vaccination willingness in the study population might reflect the extraordinary effort taken by PCD support groups to inform people about COVID-19 vaccination. Clear and specific information and involvement of representatives is important for high vaccine uptake.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Paediatric Medicine
04 Faculty of Medicine > Pre-clinic Human Medicine > Institute of Social and Preventive Medicine (ISPM)
04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Paediatric Medicine > Paediatric Pneumology

Graduate School:

Graduate School for Cellular and Biomedical Sciences (GCB)
Graduate School for Health Sciences (GHS)

UniBE Contributor:

Pedersen, Eva Sophie Lunde, Mallet, Maria Christina, Lam, Yin Ting, Goutaki, Myrofora, Kühni, Claudia

Subjects:

600 Technology > 610 Medicine & health
300 Social sciences, sociology & anthropology > 360 Social problems & social services

ISSN:

2076-393X

Publisher:

MDPI

Funders:

[4] Swiss National Science Foundation ; [204] Swiss Lung Association = Lungenliga Schweiz

Language:

English

Submitter:

Anette van Dorland

Date Deposited:

22 Dec 2021 20:01

Last Modified:

02 Mar 2023 23:35

Publisher DOI:

10.3390/vaccines9121496

PubMed ID:

34960242

Uncontrolled Keywords:

SARS-CoV-2; COVID-19; PCD; primary ciliary dyskinesia; vaccine; vaccinations; pandemic

BORIS DOI:

10.48350/163029

URI:

https://boris.unibe.ch/id/eprint/163029

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