Landers, Constantin; Ormond, Kelly E.; Blasimme, Allessandro; Brall, Caroline; Vayena, Effy (2023). Talking Ethics Early in Health Data Public Private Partnerships. Journal of business ethics, 190(3), pp. 649-659. Springer 10.1007/s10551-023-05425-w
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Talking_Ethics_Early_in_Health_Data_Public_Private_Partnerships.pdf - Published Version Available under License Creative Commons: Attribution (CC-BY). Download (1MB) | Preview |
Data access and data sharing are vital to advance medicine. A growing number of public private partnerships are set up to facilitate data access and sharing, as private and public actors possess highly complementary health data sets and treatment development resources. However, the priorities and incentives of public and private organizations are frequently in conflict. This has complicated partnerships and sparked public concerns around ethical issues such as trust, justice or privacy—in turn raising an important problem in business and data ethics: how can ethical theory inform the practice of public and private partners to mitigate misaligned incentives, and ensure that they can deliver societally beneficial innovation? In this paper, we report on the development of the Swiss Personalized Health Network’s ethical guidelines for health data sharing in public private partnerships. We describe the process of identifying ethical issues and engaging core stakeholders to incorporate their practical reality on these issues. Our report highlights core ethical issues in health data public private partnerships and provides strategies for how to overcome these in the Swiss health data context. By agreeing on and formalizing ethical principles and practices at the beginning of a partnership, partners and society can benefit from a relationship built around a mutual commitment to ethical principles. We present this summary in the hope that it will contribute to the global data sharing dialogue.
Item Type: |
Journal Article (Original Article) |
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Division/Institute: |
06 Faculty of Humanities > Department of Art and Cultural Studies > Institute of Philosophy > Theoretical Philosophy 06 Faculty of Humanities > Department of Art and Cultural Studies > Institute of Philosophy 05 Veterinary Medicine > Other Institutions > Centers Vetsuisse Faculty > Multidisciplinary Center for Infectious Diseases (MCID) |
UniBE Contributor: |
Brall, Caroline Dorothee |
Subjects: |
100 Philosophy 100 Philosophy > 170 Ethics 600 Technology > 610 Medicine & health |
ISSN: |
0167-4544 |
Publisher: |
Springer |
Language: |
English |
Submitter: |
Caroline Dorothee Brall |
Date Deposited: |
23 May 2023 08:40 |
Last Modified: |
31 Mar 2024 03:19 |
Publisher DOI: |
10.1007/s10551-023-05425-w |
BORIS DOI: |
10.48350/182798 |
URI: |
https://boris.unibe.ch/id/eprint/182798 |
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