Boon, Paul; Lescrauwaet, Emma; Aleksovska, Katina; Konti, Maria; Berger, Thomas; Leonardi, Matilde; Marson, Tony; Kallweit, Ulf; Moro, Elena; Toscano, Antonio; Rektorova, Irena; Crean, Michael; Sander, Anja; Joyce, Robert; Bassetti, Claudio L. A. (2024). A strategic neurological research agenda for Europe: Towards clinically relevant and patient-centred neurological research priorities. European journal of neurology, 31(3), e16171. Wiley 10.1111/ene.16171
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Euro_J_of_Neurology_-_2023_-_Boon_-_A_strategic_neurological_research_agenda_for_Europe_Towards_clinically_relevant_and.pdf - Published Version Available under License Creative Commons: Attribution-Noncommercial-No Derivative Works (CC-BY-NC-ND). Download (2MB) | Preview |
BACKGROUND AND PURPOSE
Neurological disorders constitute a significant portion of the global disease burden, affecting >30% of the world's population. This prevalence poses a substantial threat to global health in the foreseeable future. A lack of awareness regarding this high burden of neurological diseases has led to their underrecognition, underappreciation, and insufficient funding. Establishing a strategic and comprehensive research agenda for brain-related studies is a crucial step towards aligning research objectives among all pertinent stakeholders and fostering greater societal awareness.
METHODS
A scoping literature review was undertaken by a working group from the European Academy of Neurology (EAN) to identify any existing research agendas relevant to neurology. Additionally, a specialized survey was conducted among all EAN scientific panels, including neurologists and patients, inquiring about their perspectives on the current research priorities and gaps in neurology.
RESULTS
The review revealed the absence of a unified, overarching brain research agenda. Existing research agendas predominantly focus on specialized topics within neurology, resulting in an imbalance in the number of agendas across subspecialties. The survey indicated a prioritization of neurological disorders and research gaps.
CONCLUSIONS
Building upon the findings from the review and survey, key components for a strategic and comprehensive neurological research agenda in Europe were delineated. This research agenda serves as a valuable prioritization tool for neuroscientific researchers, as well as for clinicians, donors, and funding agencies in the field of neurology. It offers essential guidance for creating a roadmap for research and clinical advancement, ultimately leading to heightened awareness and reduced burden of neurological disorders.
Item Type: |
Journal Article (Original Article) |
|---|---|
Division/Institute: |
04 Faculty of Medicine > Department of Head Organs and Neurology (DKNS) > Clinic of Neurology |
UniBE Contributor: |
Bassetti, Claudio L.A. |
Subjects: |
600 Technology > 610 Medicine & health |
ISSN: |
1468-1331 |
Publisher: |
Wiley |
Language: |
English |
Submitter: |
Pubmed Import |
Date Deposited: |
13 Dec 2023 08:22 |
Last Modified: |
09 Feb 2024 00:14 |
Publisher DOI: |
10.1111/ene.16171 |
PubMed ID: |
38085270 |
Uncontrolled Keywords: |
Europe neurological disorders research agenda research gaps research priorities |
BORIS DOI: |
10.48350/190239 |
URI: |
https://boris.unibe.ch/id/eprint/190239 |
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