Outcomes of care during the last month of life: a systematic review to inform the development of a core outcome set.

González-Jaramillo, Valentina; Luethi, Nora; Egloff, Martina; Roa-Díaz, Zayne M; González-Jaramillo, Nathalia; Díaz-Ríos, Catalina; Christen-Cevallos Rosero, Andri; Dodd, Susanna; Eychmüller, Steffen; Zambrano, Sofía C (2024). Outcomes of care during the last month of life: a systematic review to inform the development of a core outcome set. Annals of palliative medicine, 13(3), pp. 627-640. AME Publishing Company 10.21037/apm-23-435

[img]
Preview
Text
Gonzalez-Jaramillo_AnnPalliatMed_2024.pdf - Published Version
Available under License Creative Commons: Attribution-Noncommercial-No Derivative Works (CC-BY-NC-ND).

Download (2MB) | Preview

BACKGROUND

To date, there is a lack of standardization and consensus on which outcomes are central to assess the care provided to patients in the last month of life. Therefore, we aimed to conduct a systematic review to identify relevant outcomes to inform the development of a core outcome set for the best care for the dying person.

METHODS

We conducted a systematic review of outcomes reported in the scientific literature about the care for the dying person in the last month of life. We searched for peer-reviewed studies published before February 2022 in four electronic databases. To categorise the outcomes, we employed the taxonomy developed by the "Core Outcome Measures in Effectiveness Trials" collaboration.

RESULTS

Out of the 2,933 articles retrieved, 619 were included for analyses. The majority of studies (71%) were retrospective and with data extracted from chart reviews (71%) . We extracted 1,951 outcomes in total, from which, after deletion of repeated outcomes, we identified 256 unique ones. The most frequently assessed outcomes were those related to medication or therapeutic interventions and those to hospital/ healthcare use. Outcomes related to psychosocial wellbeing were rarely assessed. The closer to death, the less frequently the outcomes were studied.

CONCLUSIONS

Most outcomes were related to medical interventions or to hospital use. Only a few studies focused on other components of integrated care such as psychosocial aspects. It remains to be defined which of these outcomes are fundamental to achieve the best care for the dying.

Item Type:

Journal Article (Review Article)

Division/Institute:

04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Radiation Oncology
04 Faculty of Medicine > Pre-clinic Human Medicine > Institute of Social and Preventive Medicine (ISPM)
04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Medical Oncology

UniBE Contributor:

Gonzalez Jaramillo, Valentina, Lüthi, Nora, Egloff, Martina, Roa Diaz, Zayne Milena, Gonzalez Jaramillo, Nathalia, Diaz Rios, Catalina, Christen-Cevallos Rosero, Andri, Eychmüller, Steffen, Zambrano Ramos, Sofia Carolina

Subjects:

600 Technology > 610 Medicine & health
300 Social sciences, sociology & anthropology > 360 Social problems & social services

ISSN:

2224-5839

Publisher:

AME Publishing Company

Funders:

[222] Horizon 2020

Language:

English

Submitter:

Pubmed Import

Date Deposited:

11 Mar 2024 14:19

Last Modified:

19 Jun 2024 08:13

Publisher DOI:

10.21037/apm-23-435

PubMed ID:

38462939

Uncontrolled Keywords:

Terminal care core outcome set (COS) review systematic

BORIS DOI:

10.48350/194120

URI:

https://boris.unibe.ch/id/eprint/194120

Actions (login required)

Edit item Edit item
Provide Feedback