The Swiss Childhood Cancer Registry: rationale, organisation and results for the years 2001-2005

Michel, Gisela; von der Weid, NX; Zwahlen, M; Adam, M; Rebholz, CE; Kuehni, CE; Swiss, Childhood Cancer Registry; Swiss, Paediatric Oncology Group (SPOG) Scientific Committee (2007). The Swiss Childhood Cancer Registry: rationale, organisation and results for the years 2001-2005. Swiss medical weekly, 137(35-36), pp. 502-9. Muttenz: EMH Schweizerischer Ärzteverlag

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QUESTIONS UNDER STUDY: Childhood cancer is a rare but severe disease. Therefore central registration of all cases is essential for surveillance and management. This paper describes the methodology and basic results of the Swiss Childhood Cancer Registry (SCCR). METHODS: The SCCR was established in 1976, originally as a national hospital-based registry of childhood malignancies. All 9 paediatric oncology-haematology clinics in Switzerland provide baseline and follow-up information on all children diagnosed with cancer. These data are registered centrally and diagnoses are coded according to the International Classification of Childhood Cancer. RESULTS: From 2001-2005, 887 cases of childhood cancer in Swiss residents under the age of 15 years were registered in the SCCR. Of these, 281 (31.7%) were leukaemias, 223 (24.0%) were CNS tumours, and 116 (13.1%) were lymphomas. The age-standardised annual incidence per 1 Million person-years (age below 15 years; world standardisation) was 154.0 (95% CI 143.7-164.3; N = 887). The incidence was higher for boys (170.2, 155.0-185.4; N = 501) than for girls (136.9, 123.0-150.8; N = 386). CONCLUSION: The close collaboration between all paediatric oncologists-haematologists in Switzerland and a university department allowed the creation of a national population-based cancer registry with detailed clinical information. The SCCR produces cancer type specific incidence and survival estimates and allows the development of nested research projects on childhood cancer aetiology, management and outcome, both on a national and on an international level.

Item Type:

Journal Article (Original Article)


04 Faculty of Medicine > Pre-clinic Human Medicine > Institute of Social and Preventive Medicine (ISPM)

UniBE Contributor:

Michel, Gisela, Zwahlen, Marcel, Adam, Martin, Rebholz, Cornelia, Kühni, Claudia


600 Technology > 610 Medicine & health
300 Social sciences, sociology & anthropology > 360 Social problems & social services






EMH Schweizerischer Ärzteverlag




Factscience Import

Date Deposited:

04 Oct 2013 14:52

Last Modified:

05 Dec 2022 14:16

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URI: (FactScience: 30365)

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