Coping is excellent in Swiss Children with inflammatory bowel disease: results from the Swiss IBD cohort study

Rogler, Daniela; Fournier, Nicolas; Pittet, Valérie; Bühr, Patrick; Heyland, Klaas; Friedt, Michael; Koller, Rebekka; Rueger, Vanessa; Herzog, Denise; Nydegger, Andreas; Schäppi, Michela; Schibli, Susanne; Spalinger, Johannes; Rogler, Gerhard; Braegger, Christian P (2014). Coping is excellent in Swiss Children with inflammatory bowel disease: results from the Swiss IBD cohort study. Journal of Crohn's & Colitis, 8(5), pp. 409-420. Elsevier 10.1016/j.crohns.2013.10.004

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BACKGROUND Inflammatory bowel disease (IBD) starting during childhood has been assumed to impair quality of life (QoL) of affected children. As this aspect is crucial for further personality development, the health-related quality of life (HRQOL) was assessed in a Swiss nationwide cohort to obtain detailed information on the fields of impairment. METHODS Data were prospectively acquired from pediatric patients included in the Swiss IBD Cohort Study. IBD activity was evaluated by PCDAI and PUCAI. The age adapted KIDSCREEN questionnaire was evaluated for 110 children with IBD (64 with Crohn's disease 46 with ulcerative colitis). Data were analyzed with respect to established reference values of healthy controls. RESULTS In the KIDSCREEN index a moderate impairment was only found for physical wellbeing due to disease activity. In contrast, mental well-being and social support were even better as compared to control values. A subgroup analysis revealed that this observation was restricted to the children in the German speaking part of Switzerland, whereas there was no difference compared to controls in the French part of Switzerland. Furthermore, autonomy and school variables were significantly higher in the IBD patients as compared to controls. CONCLUSIONS The social support for children with IBD is excellent in this cohort. Only physical well-being was impaired due to disease activity, whereas all other KIDSCREEN parameters were better as compared to controls. This indicates that effective coping and support strategies may be able to compensate the burden of disease in pediatric IBD patients.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Paediatric Medicine
04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Paediatric Medicine > Paediatric Gastroenterology

UniBE Contributor:

Schibli, Susanne and Spalinger, Johannes

Subjects:

600 Technology > 610 Medicine & health

ISSN:

1873-9946

Publisher:

Elsevier

Language:

English

Submitter:

André Schaller

Date Deposited:

19 Mar 2015 15:50

Last Modified:

19 Mar 2015 15:50

Publisher DOI:

10.1016/j.crohns.2013.10.004

PubMed ID:

24230970

Uncontrolled Keywords:

Coping, Mental well-being, Pediatric inflammatory bowel disease, Physical well-being, Social support

URI:

https://boris.unibe.ch/id/eprint/65292

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