Transition from adolescence to adulthood in congenital heart disease - Many roads lead to Rome

Thomet, Corina; Schwerzmann, Markus; Greutmann, Matthias (2015). Transition from adolescence to adulthood in congenital heart disease - Many roads lead to Rome. Progress in pediatric cardiology, 39(2 Part B), pp. 119-124. Elsevier 10.1016/j.ppedcard.2015.10.012

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More than 90% of children born with heart defects reach adulthood. They continue to require specialized medical care. In most countries, their care has to be transferred from the pediatric care environment to specialized adult clinics. This transfer of care usually occurs at a time when adolescents become young adults. Supporting adolescents and emerging adults with congenital heart disease through transition has been recognized as an important task of their treating teams in recent years. An environment where adolescents feel welcome and where education and patient participation are fostered is crucial. For an optimal transition process, patients, their families and all health care providers need to be involved. Different models for transition programs have emerged, depending on local policies and resources. The authors offer insight into established transition programs in Bern and Zurich, Switzerland. Advantages and challenges of different models of care and transition programs are presented.

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