Promoting palliative care in the community: production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care

Murray, Scott A; Firth, Adam; Schneider, Nils; Van den Eynden, Bart; Gomez-Batiste, Xavier; Brogaard, Trine; Villanueva, Tiago; Abela, Jurgen; Eychmüller, Steffen; Mitchell, Geoffrey; Downing, Julia; Sallnow, Libby; van Rijswijk, Erik; Barnard, Alan; Lynch, Marie; Fogen, Frederic; Moine, Sébastien (2015). Promoting palliative care in the community: production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care. Palliative medicine, 29(2), pp. 101-111. Sage 10.1177/0269216314545006

[img] Text
101.full.pdf - Published Version
Restricted to registered users only
Available under License Publisher holds Copyright.

Download (1MB) | Request a copy

BACKGROUND A multidisciplinary European Association of Palliative Care Taskforce was established to scope the extent of and learn what facilitates and hinders the development of palliative care in the community across Europe. AIM To document the barriers and facilitators for palliative care in the community and to produce a resource toolkit that palliative care specialists, primary care health professionals or policymakers, service developers, educationalists and national groups more generally could use to facilitate the development of palliative care in their own country. DESIGN (1) A survey instrument was sent to general practitioners with knowledge of palliative care services in the community in a diverse sample of European countries. We also conducted an international systematic review of tools used to identify people for palliative care in the community. (2) A draft toolkit was then constructed suggesting how individual countries might best address these issues, and an online survey was then set up for general practitioners and specialists to make comments. Iterations of the toolkit were then presented at international palliative care and primary care conferences. RESULTS Being unable to identify appropriate patients for palliative care in the community was a major barrier internationally. The systematic review identified tools that might be used to help address this. Various facilitators such as national strategies were identified. A primary palliative care toolkit has been produced and refined, together with associated guidance. CONCLUSION Many barriers and facilitators were identified. The primary palliative care toolkit can help community-based palliative care services to be established nationally.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Medical Oncology

UniBE Contributor:

Eychmüller, Steffen

Subjects:

600 Technology > 610 Medicine & health

ISSN:

1477-030X

Publisher:

Sage

Language:

English

Submitter:

Marianne Zahn

Date Deposited:

21 Mar 2016 12:14

Last Modified:

24 Mar 2016 00:06

Publisher DOI:

10.1177/0269216314545006

PubMed ID:

25395577

Uncontrolled Keywords:

Palliative care; community health services; policy; primary health care; primary palliative care; qualitative research

BORIS DOI:

10.7892/boris.77256

URI:

https://boris.unibe.ch/id/eprint/77256

Actions (login required)

Edit item Edit item
Provide Feedback