Transition bei angeborenen Herzfehlern in der Schweiz

Schwerzmann, Markus; Thomet, Corina (2016). Transition bei angeborenen Herzfehlern in der Schweiz. Pädiatrie & Pädologie, 51(S1), pp. 20-24. Springer 10.1007/s00608-016-0349-9

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The chance of growing up to adulthood with a congenital heart defect is currently more than 90 %. However, in spite of all medical advances in the past, heart defects cannot be considered to be cured, even after successful repair. Long-term complications such as cardiac arrhythmias, heart failure, embolic events, endocarditis, or reoperation for residual findings or valve degeneration are frequent. For this reason, life-long specialized care is recommended for a variety of congenital heart defects, and adolescents with heart defects should be timely prepared to take on personal responsibility for their health. Thus, a structured transition is of crucial benefit. With a structured transition process, adolescents are on the one hand prepared for their adult role, and on the other, the appropriate transfer of care from the pediatric to the adult physicians can be guaranteed. Adolescents who are not transfered and do not have specialist care in adulthood are at a higher risk of suffering from cardiovascular complications in later life. It has been shown that mortality in adults with congenital heart defects with specialized care is lower than in patients who do not have the appropriate care. Using the example of the Center for Congenital Heart Defects in Bern, it is demonstrated how a nurse-led transition clinic can be established and successfully implemented.

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