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Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Yang, Hsiao Ling; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; Menahem, Samuel; Caruana, Maryanne; ... (2023). Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. European journal of cardiovascular nursing, 22(4), pp. 339-344. Oxford University Press 10.1093/eurjcn/zvac057
Van Bulck, Liesbet; Kovacs, Adrienne H; Goossens, Eva; Luyckx, Koen; Zaidi, Ali; Wang, Jou-Kou; Yadeta, Dejuma; Windram, Jonathan; Van De Bruaene, Alexander; Thomet, Corina; Thambo, Jean-Benoît; Taunton, Marshall; Sasikumar, Navaneetha; Sandberg, Camilla; Saidi, Arwa; Rutz, Tobias; Ortiz, Lucia; Mwita, Julius Chacha; Moon, Ju Ryoung; Menahem, Samuel; ... (2022). Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. International journal of cardiology, 363, pp. 30-39. Elsevier 10.1016/j.ijcard.2022.06.064
Lu, Chun-Wei; Wang, Jou-Kou; Yang, Hsiao-Ling; Kovacs, Adrienne H; Luyckx, Koen; Ruperti-Repilado, Francisco Javier; Van De Bruaene, Alexander; Enomoto, Junko; Sluman, Maayke A; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; ... (2022). Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. Journal of the American Heart Association, 11(9), e024993. American Heart Association 10.1161/JAHA.121.024993
Scognamiglio, Giancarlo; Fusco, Flavia; Hankel, Tara C; Bouma, Berto J; Greutmann, Matthias; Khairy, Paul; Ladouceur, Magalie; Dimopoulos, Konstantinos; Niwa, Koichiro; Broberg, Craig S; Miranda, Berta; Budts, Werner; Bouchardy, Judith; Schwerzmann, Markus; Lipczyńska, Magdalena; Tobler, Daniel; Tsai, Shane F; Egbe, Alexander C; Aboulhosn, Jamil; Fernandes, Susan M; ... (2021). Safety and efficacy of non-vitamin K antagonist oral anticoagulants for prevention of thromboembolism in adults with systemic right ventricle: Results from the NOTE international registry. International journal of cardiology, 322, pp. 129-134. Elsevier 10.1016/j.ijcard.2020.08.034
Ko, Jong Mi; White, Kamila S; Kovacs, Adrienne H; Tecson, Kristen M; Apers, Silke; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Wang, Jou-Kou; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; ... (2019). Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. Journal of psychosomatic research, 124(109762), p. 109762. Elsevier 10.1016/j.jpsychores.2019.109762
Holbein, Christina E; Fogleman, Nicholas D; Hommel, Kevin; Apers, Silke; Rassart, Jessica; Moons, Philip; Luyckx, Koen; Sluman, Maayke A; Enomoto, Junko; Johansson, Bengt; Yang, Hsiao-Ling; Dellborg, Mikael; Subramanyan, Raghavan; Jackson, Jamie L; Budts, Werner; Kovacs, Adrienne H; Morrison, Stacey; Tomlin, Martha; Gosney, Kathy; Soufi, Alexandra; ... (2018). A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenital heart disease, 13(3), pp. 392-400. Blackwell 10.1111/chd.12583
Moons, Philip; Kovacs, Adrienne H; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Yang, Hsiao-Ling; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; Menahem, Samuel; Caruana, Maryanne; ... (2018). Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. International journal of cardiology, 251, pp. 34-41. Elsevier 10.1016/j.ijcard.2017.10.064
Fogleman, Nicholas D; Apers, Silke; Moons, Philip; Morrison, Stacey; Wittekind, Samuel G; Tomlin, Martha; Gosney, Kathy; Sluman, Maayke A; Johansson, Bengt; Enomoto, Junko; Dellborg, Mikael; Lu, Chun-Wei; Subramanyan, Raghavan; Luyckx, Koen; Budts, Werner; Jackson, Jamie; Kovacs, Adrienne; Soufi, Alexandra; Eriksen, Katrine; Thomet, Corina; ... (2017). Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective. American Heart Journal, 193, pp. 55-62. Elsevier 10.1016/j.ahj.2017.07.019
Rassart, Jessica; Apers, Silke; Kovacs, Adrienne H; Moons, Philip; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Wang, Jou-Kou; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Rempel, Gwen R; Menahem, Samuel; ... (2017). Illness perceptions in adult congenital heart disease: A multi-center international study. International journal of cardiology, 244, pp. 130-138. Elsevier 10.1016/j.ijcard.2017.06.072
Sillman, Christina; Morin, Joanne; Thomet, Corina; Barber, Deena; Mizuno, Yoshiko; Yang, Hsiao-Ling; Malpas, Theresa; Flocco, Serena Francesca; Finlay, Clare; Chen, Chi-Wen; Balon, Yvonne; Fernandes, Susan M (2017). Adult congenital heart disease nurse coordination: Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD). International journal of cardiology, 229, pp. 125-131. Elsevier 10.1016/j.ijcard.2016.10.051
