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Van Bulck, Liesbet; Kovacs, Adrienne H; Goossens, Eva; Luyckx, Koen; Zaidi, Ali; Wang, Jou-Kou; Yadeta, Dejuma; Windram, Jonathan; Van De Bruaene, Alexander; Thomet, Corina; Thambo, Jean-Benoît; Taunton, Marshall; Sasikumar, Navaneetha; Sandberg, Camilla; Saidi, Arwa; Rutz, Tobias; Ortiz, Lucia; Mwita, Julius Chacha; Moon, Ju Ryoung; Menahem, Samuel; ... (2022). Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. International journal of cardiology, 363, pp. 30-39. Elsevier 10.1016/j.ijcard.2022.06.064
Schwerzmann, Markus; Goossens, Eva; Gallego, Pastora; Kovacs, Adrienne H; Moons, Philip; Swan, Lorna; Tobler, Daniel; de Stoutz, Noémi; Gabriel, Harald; Greutmann, Matthias; Roos-Hesselink, Jolien W; Sobanski, Piotr Z; Thomet, Corina (2020). Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease (ISACHD). European Heart Journal, 41(43), pp. 4200-4210. Oxford University Press 10.1093/eurheartj/ehaa614
