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Ardura-Garcia, Cristina; Goutaki, Myrofora; Carr, Siobhán B; Crowley, Suzanne; Halbeisen, Florian S.; Nielsen, Kim G; Pennekamp, Petra; Raidt, Johanna; Thouvenin, Guillaume; Yiallouros, Panayiotis K; Omran, Heymut; Kuehni, Claudia E. (2020). Registries and collaborative studies for primary ciliary dyskinesia in Europe. ERJ Open Research, 6(2), 00005-2020. European Respiratory Society 10.1183/23120541.00005-2020
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S.; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; ... (2020). Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD. ERJ Open Research, 6(1), 00237-2019. European Respiratory Society 10.1183/23120541.00237-2019
Goutaki, Myrofora; Eich, Marc O.; Halbeisen, Florian S.; Barben, Juerg; Casaulta, Carmen; Clarenbach, Christian; Hafen, Gaudenz; Latzin, Philipp; Regamey, Nicolas; Lazor, Romain; Tschanz, Stefan A.; Zanolari, Maura; Maurer, Elisabeth; Kuehni, Claudia E. (2019). The Swiss Primary Ciliary Dyskinesia registry: objectives, methods and first results. Swiss medical weekly, 149, w20004. EMH Schweizerischer Ärzteverlag 10.4414/smw.2019.20004
