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Lam, Yin Ting; Papon, Jean-François; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Caversaccio, Nathalie; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D; Emiralioglu, Nagehan; Erdem, Ela; Gogh, Christine van; Gokdemir, Yasemin; Gunaydın, Onder; Haarman, Eric G; Harris, Amanda; Hayn, Isolde; Ismail-Koch, Hasnaa; Karadag, Bulent; ... (2023). Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study. Clinical and experimental otorhinolaryngology, 16(4), pp. 407-412. Korean Society of Otorhinolaryngology-Head and Neck Surgery 10.21053/ceo.2023.01130
Goutaki, Myrofora; Lam, Yin Ting; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Caversaccio, Nathalie; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D; Emiralioglu, Nagehan; Erdem, Ela; van Gogh, Christine; Gunaydin, Onder; Haarman, Eric G; Harris, Amanda; Hayn, Isolde; Ismail-Koch, Hasnaa; Karadag, Bulent; Kempeneers, Céline; ... (2023). Characteristics of Otologic Disease Among Patients With Primary Ciliary Dyskinesia. JAMA otolaryngology - head & neck surgery, 149(7), pp. 587-596. American Medical Association 10.1001/jamaoto.2023.0841
Halbeisen, Florian S; Pedersen, Eva S L; Goutaki, Myrofora; Spycher, Ben D; Amirav, Israel; Boon, Mieke; Malena, Cohen-Cymberknoh; Crowley, Suzanne; Emiralioglu, Nagehan; Haarman, Eric G; Karadag, Bulent; Koerner-Rettberg, Cordula; Latzin, Philipp; Loebinger, Michael R; Lucas, Jane S; Mazurek, Henryk; Morgan, Lucy; Marthin, June; Pohunek, Petr; Santamaria, Francesca; ... (2022). Lung function from school age to adulthood in primary ciliary dyskinesia. European respiratory journal, 60(4), p. 2101918. European Respiratory Society 10.1183/13993003.01918-2021
Goutaki, Myrofora; Lam, Yin Ting; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Bequignon, Emilie; Boon, Mieke; Burgess, Andrea; Coste, Andre; Emiralioglu, Nagehan; Erdem, Ela; Haarman, Eric G; Harris, Amanda; Hool, Sara-Lynn; Karadag, Bulent; Kim, Sookyung; Latzin, Philipp; Lorent, Natalie; Ozcelik, Ugur; Reula, Ana; ... (2021). Study protocol: the ear-nose-throat (ENT) prospective international cohort of patients with primary ciliary dyskinesia (EPIC-PCD). BMJ open, 11(10), e051433. BMJ Publishing Group 10.1136/bmjopen-2021-051433
Chang, Anne B; Fortescue, Rebecca; Grimwood, Keith; Alexopoulou, Efthymia; Bell, Leanne; Boyd, Jeanette; Bush, Andrew; Chalmers, James D; Hill, Adam T; Karadag, Bulent; Midulla, Fabio; McCallum, Gabrielle B; Powell, Zena; Snijders, Deborah; Song, Woo-Jung; Tonia, Thomy; Wilson, Christine; Zacharasiewicz, Angela; Kantar, Ahmad (2021). Task Force report: European Respiratory Society guidelines for the management of children and adolescents with bronchiectasis. European respiratory journal, 58(2), p. 2002990. European Respiratory Society 10.1183/13993003.02990-2020
Chang, Anne B; Boyd, Jeanette; Bell, Leanne; Goyal, Vikas; Masters, I Brent; Powell, Zena; Wilson, Christine; Zacharasiewicz, Angela; Alexopoulou, Efthymia; Bush, Andrew; Chalmers, James D; Fortescue, Rebecca; Hill, Adam T; Karadag, Bulent; Midulla, Fabio; McCallum, Gabrielle B; Snijders, Deborah; Song, Woo-Jung; Tonia, Thomy; Grimwood, Keith; ... (2021). Clinical and research priorities for children and young people with bronchiectasis: an international roadmap. ERJ Open Research, 7(3), 00122-2021. European Respiratory Society 10.1183/23120541.00122-2021
Crowley, Suzanne; Azevedo, Inês; Boon, Mieke; Bush, Andrew; Eber, Ernst; Haarman, Eric; Karadag, Bulent; Kötz, Karsten; Leigh, Margaret; Moreno-Galdó, Antonio; Mussaffi, Huda; Nielsen, Kim G; Omran, Heymut; Papon, Jean-François; Pohunek, Petr; Priftis, Kostas; Rindlisbacher, Bernhard; Santamaria, Francesca; Valiulis, Arunas; Witt, Michal; ... (2020). Access to medicines for rare diseases: beating the drum for primary ciliary dyskinesia [editorial]. ERJ Open Research, 6(3), 00377-2020. European Respiratory Society 10.1183/23120541.00377-2020
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S.; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; ... (2020). Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD. ERJ Open Research, 6(1), 00237-2019. European Respiratory Society 10.1183/23120541.00237-2019
Halbeisen, Florian S; Shoemark, Amelia; Barbato, Angelo; Boon, Mieke; Carr, Siobhan; Crowley, Suzanne; Hirst, Rob; Karadag, Bulent; Koerner-Rettberg, Cordula; Loebinger, Michael R; Lucas, Jane S; Maitre, Bernard; Mazurek, Henryk; Özçelik, Uğur; Martinů, Vendula; Schwerk, Nicolaus; Thouvenin, Guillaume; Tschanz, Stefan A.; Yiallouros, Panayiotis; Goutaki, Myrofora; ... (2019). Time trends in diagnostic testing for PCD in Europe - Research letter. European respiratory journal, 54(4), p. 1900528. European Respiratory Society 10.1183/13993003.00528-2019
Kouis, Panayiotis; Goutaki, Myrofora; Halbeisen, Florian S; Gioti, Ifigeneia; Middleton, Nicos; Amirav, Israel; Barbato, Angelo; Behan, Laura; Boon, Mieke; Emiralioglu, Nagehan; Haarman, Eric G; Karadag, Bulent; Koerner-Rettberg, Cordula; Lazor, Romain; Loebinger, Michael R; Maitre, Bernard; Mazurek, Henryk; Morgan, Lucy; Nielsen, Kim Gjerum; Omran, Heymut; ... (2019). Prevalence and course of disease after lung resection in primary ciliary dyskinesia: a cohort & nested case-control study. Respiratory research, 20(1), p. 212. BioMed Central 10.1186/s12931-019-1183-y
Halbeisen, Florian S; Goutaki, Myrofora; Spycher, Ben D; Amirav, Israel; Behan, Laura; Boon, Mieke; Hogg, Claire; Casaulta, Carmen; Crowley, Suzanne; Haarman, Eric G; Karadag, Bulent; Koerner-Rettberg, Cordula; Loebinger, Michael R; Mazurek, Henryk; Morgan, Lucy; Nielsen, Kim G; Omran, Heymut; Santamaria, Francesca; Schwerk, Nicolaus; Thouvenin, Guillaume; ... (2018). Lung function in patients with Primary Ciliary Dyskinesia: an iPCD Cohort study. European respiratory journal, 52(2), p. 1801040. European Respiratory Society 10.1183/13993003.01040-2018
Goutaki, Myrofora; Halbeisen, Florian S; Spycher, Ben D; Maurer, Elisabeth; Belle, Fabiën; Amirav, Israel; Behan, Laura; Boon, Mieke; Carr, Siobhan; Casaulta, Carmen; Clement, Annick; Crowley, Suzanne; Dell, Sharon; Ferkol, Thomas; Haarman, Eric G; Karadag, Bulent; Knowles, Michael; Koerner-Rettberg, Cordula; Leigh, Margaret W; Loebinger, Michael R; ... (2017). Growth and nutritional status, and their association with lung function: a study from the international Primary Ciliary Dyskinesia Cohort. European respiratory journal, 50(6), p. 1701659. European Respiratory Society 10.1183/13993003.01659-2017
Goutaki, Myrofora; Maurer, Elisabeth; Halbeisen, Florian S; Amirav, Israel; Barbato, Angelo; Behan, Laura; Boon, Mieke; Casaulta, Carmen; Clement, Annick; Crowley, Suzanne; Haarman, Eric; Hogg, Claire; Karadag, Bulent; Koerner-Rettberg, Cordula; Leigh, Margaret W; Loebinger, Michael R; Mazurek, Henryk; Morgan, Lucy; Nielsen, Kim G; Omran, Heymut; ... (2017). The international primary ciliary dyskinesia cohort (iPCD Cohort): methods and first results. European respiratory journal, 49(1), p. 1601181. European Respiratory Society 10.1183/13993003.01181-2016
Strippoli, Marie-Pierre F; Frischer, Thomas; Barbato, Angelo; Snijders, Deborah; Maurer, Elisabeth; Lucas, Jane S A; Eber, Ernst; Karadag, Bulent; Pohunek, Petr; Zivkovic, Zorica; Escribano, Amparo; O'Callaghan, Chris; Bush, Andrew; Kuehni, Claudia E; ERS Task Force onPrimary Ciliary Dyskinesia in Children, (2012). Management of primary ciliary dyskinesia in European children: recommendations and clinical practice. European respiratory journal, 39(6), pp. 1482-91. Sheffield, UK: European Respiratory Society 10.1183/09031936.00073911
