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Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Yang, Hsiao Ling; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; Menahem, Samuel; Caruana, Maryanne; ... (2023). Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. European journal of cardiovascular nursing, 22(4), pp. 339-344. Oxford University Press 10.1093/eurjcn/zvac057
Lu, Chun-Wei; Wang, Jou-Kou; Yang, Hsiao-Ling; Kovacs, Adrienne H; Luyckx, Koen; Ruperti-Repilado, Francisco Javier; Van De Bruaene, Alexander; Enomoto, Junko; Sluman, Maayke A; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; ... (2022). Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. Journal of the American Heart Association, 11(9), e024993. American Heart Association 10.1161/JAHA.121.024993
Holbein, Christina E; Fogleman, Nicholas D; Hommel, Kevin; Apers, Silke; Rassart, Jessica; Moons, Philip; Luyckx, Koen; Sluman, Maayke A; Enomoto, Junko; Johansson, Bengt; Yang, Hsiao-Ling; Dellborg, Mikael; Subramanyan, Raghavan; Jackson, Jamie L; Budts, Werner; Kovacs, Adrienne H; Morrison, Stacey; Tomlin, Martha; Gosney, Kathy; Soufi, Alexandra; ... (2018). A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenital heart disease, 13(3), pp. 392-400. Blackwell 10.1111/chd.12583
Moons, Philip; Kovacs, Adrienne H; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Yang, Hsiao-Ling; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; Menahem, Samuel; Caruana, Maryanne; ... (2018). Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. International journal of cardiology, 251, pp. 34-41. Elsevier 10.1016/j.ijcard.2017.10.064
Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Mattsson, Eva; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; ... (2016). Quality of Life of Adults With Congenital Heart Disease in 15 Countries. Journal of the American College of Cardiology, 67(19), pp. 2237-2245. Elsevier 10.1016/j.jacc.2016.03.477
Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Alday, Luis; Berghammer, Malin; Budts, Werner; Callus, Edward; Caruana, Maryanne; Chidambarathanu, Shanthi; Cook, Stephen C.; Dellborg, Mikael; Enomoto, Junko; Eriksen, Katrine; Fernandes, Susan M.; Jackson, Jamie L.; Johansson, Bengt; Khairy, Paul; Kutty, Shelby; Menahem, Samuel; Rempel, Gwen; ... (2015). Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease — International Study (APPROACH-IS): Rationale, design, and methods. International journal of cardiology, 179, pp. 334-342. Elsevier 10.1016/j.ijcard.2014.11.084
