Kochan, Andrew; Ong, Shaun; Guler, Sabina; Johannson, Kerri A; Ryerson, Christopher J; Goobie, Gillian C (2021). Social Media Content of Idiopathic Pulmonary Fibrosis Groups and Pages on Facebook: Cross-sectional Analysis. JMIR Public health and surveillance, 7(5), e24199. JMIR Publications 10.2196/24199
|
Text
Guler_Social_Media.pdf - Published Version Available under License Creative Commons: Attribution (CC-BY). Download (937kB) | Preview |
BACKGROUND
Patients use Facebook as a resource for medical information. We analyzed posts on idiopathic pulmonary fibrosis (IPF)-related Facebook groups and pages for the presence of guideline content, user engagement, and usefulness.
OBJECTIVE
The objective of this study was to describe and analyze posts from Facebook groups and pages that primarily focus on IPF-related content.
METHODS
Cross-sectional analysis was performed on a single date, identifying Facebook groups and pages resulting from separately searching "IPF" and "idiopathic pulmonary fibrosis." For inclusion, groups and pages needed to meet either search term and be in English, publicly available, and relevant to IPF. Every 10th post was assessed for general characteristics, source, focus, and user engagement metrics. Posts were analyzed for presence of IPF guideline content, useful scientific information (eg, scientific publications), useful support information (eg, information about support groups), and potentially harmful information.
RESULTS
Eligibility criteria were met by 12 groups and 27 pages, leading to analysis of 523 posts. Of these, 42% contained guideline content, 24% provided useful support, 20% provided useful scientific information, and 5% contained potentially harmful information. The most common post source was nonmedical users (85%). Posts most frequently focused on IPF-related news (29%). Posts containing any guideline content had fewer likes or comments and a higher likelihood of containing potentially harmful content. Posts containing useful supportive information had more likes, shares, and comments.
CONCLUSIONS
Facebook contains useful information about IPF, but posts with misinformation and less guideline content have higher user engagement, making them more visible. Identifying ways to help patients with IPF discriminate between useful and harmful information on Facebook and other social media platforms is an important task for health care professionals.
Item Type: |
Journal Article (Original Article) |
|---|---|
Division/Institute: |
04 Faculty of Medicine > Department of Gastro-intestinal, Liver and Lung Disorders (DMLL) > Clinic of Pneumology |
UniBE Contributor: |
Guler, Sabina Anna |
Subjects: |
600 Technology > 610 Medicine & health |
ISSN: |
2369-2960 |
Publisher: |
JMIR Publications |
Language: |
English |
Submitter: |
Heidi Lobsiger |
Date Deposited: |
21 Jun 2021 16:28 |
Last Modified: |
02 Mar 2023 23:34 |
Publisher DOI: |
10.2196/24199 |
PubMed ID: |
34057425 |
Uncontrolled Keywords: |
idiopathic pulmonary fibrosis internet interstitial lung disease patient education social media |
BORIS DOI: |
10.48350/156771 |
URI: |
https://boris.unibe.ch/id/eprint/156771 |
Actions (login required)
 |
Edit item |