Public perception of palliative care: a survey of the general population.

Fliedner, Monika C.; Zambrano, Sofia C.; Eychmueller, Steffen (2021). Public perception of palliative care: a survey of the general population. Palliative care and social practice, 15, p. 26323524211017546. Sage 10.1177/26323524211017546

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Background

The public's view of palliative care often involves its potential to improve of quality-of-life as well as its use as a last resource prior to death.

Objective

To obtain an idea of the image of palliative care held by the public in the German-speaking part of Switzerland, the authors sought to understand (1) the perceptions of palliative care and the (2) elements important when thinking about their own end of life.

Methods and Sample

A qualitative design with an inductive reasoning approach based on Mayring (2014) was chosen. Visitors at an exhibition about palliative care in six locations provided hand-written answers on provided cards to two statements: (1) if I hear the term 'Palliative Care' I think of … and (2) when thinking about my own end of life, the following is important to me ….

Results

Answers of 199 visitors (mean age 52, mostly in a good/very good health status) were analysed. In response to hearing the term palliative care, six areas were categorized: (1) the main focus; (2) ways of providing palliative care; (3) the best timing; (4) places where palliative care is provided; (5) who is seen as provider and (6) outcomes of palliative care. Five categories to the statement about their own end-of-life were identified: (1) the ability to look back on a fulfilled life and being satisfied; (2) maintaining trusting relationships until the end; (3) organizing affairs and having everything settled; (4) having their family being cared for and (5) relief of suffering with the support of knowledgeable people.

Conclusion

Palliative care was mostly associated with positive terms acknowledging an interprofessional approach. Maintaining one's dignity as well as dying without suffering pointed at the persisting stigma that palliative care is mainly limited to end-of-life care. The results may help healthcare professionals to better understand how the public view palliative care.

Item Type:

Journal Article (Original Article)

Division/Institute:

04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Radiation Oncology
04 Faculty of Medicine > Department of Haematology, Oncology, Infectious Diseases, Laboratory Medicine and Hospital Pharmacy (DOLS) > Clinic of Medical Oncology

UniBE Contributor:

Fliedner, Monika, Zambrano Ramos, Sofia Carolina, Eychmüller, Steffen

Subjects:

600 Technology > 610 Medicine & health
300 Social sciences, sociology & anthropology > 360 Social problems & social services

ISSN:

2632-3524

Publisher:

Sage

Language:

English

Submitter:

Beatrice Scheidegger

Date Deposited:

28 Dec 2021 14:40

Last Modified:

05 Dec 2022 15:55

Publisher DOI:

10.1177/26323524211017546

PubMed ID:

34164622

Uncontrolled Keywords:

end-of-life palliative care public health public perception qualitative research

BORIS DOI:

10.48350/161951

URI:

https://boris.unibe.ch/id/eprint/161951

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