Gerber, Anne-Kathrin; Feuz, Ursula; Zimmermann, Karin; Mitterer, Stefan; Simon, Michael; von der Weid, Nicolas; Bergsträsser, Eva (2024). Work-related quality of life in professionals involved in pediatric palliative care: a repeated cross-sectional comparative effectiveness study. Palliative care and social practice, 18 Sage 10.1177/26323524241247857
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BACKGROUND
Working in pediatric palliative care (PPC) impacts healthcare and allied professionals' work-related quality of life (QoL). Professionals who lack specific PPC training but who regularly provide services to the affected children have articulated their need for support from specialized PPC (SPPC) teams.
OBJECTIVES
This study had two objectives: (1) to evaluate whether the availability of a SPPC team impacted the work-related QoL of professionals not specialized in PPC; and (2) to explore the work-related QoL of professionals working in PPC without specialized training.
DESIGN
Repeated cross-sectional comparative effectiveness design.
METHODS
One hospital with an established SPPC program and affiliated institutions provided the intervention group (IG). Three hospitals and affiliated institutions where generalist PPC was offered provided the comparison group (CG). Data were collected by paper-pencil questionnaire in 2021 and 2022. The Professional Quality of Life (ProQOL 5) questionnaire was used to assess work-related QoL, yielding separate scores for burnout (BO), secondary traumatic stress (STS) and compassion satisfaction (CS). A descriptive statistical analysis was performed and general estimation equations were modelled. To increase the comparability of the IG and CG, participants were matched by propensity scores.
RESULTS
The 301 participating non-PPC-specialized professionals had overall low to moderate levels of BO and STS and moderate to high levels of CS. However, none of these scores (BO: p = 0.36; STS: p = 0.20; CS: p = 0.65) correlated significantly with support from an SPPC team. Compared to nurses, physicians showed higher levels of BO (1.70; p = 0.02) and STS (2.69; p ⩽ 0.001).
CONCLUSION
Although the study sample's overall work-related QoL was satisfactory, it showed a considerable proportion of moderate BO and STS, as well as moderate CS. To provide tailored support to professionals working in PPC, evidence regarding key SPPC support elements and their effectiveness is needed.
TRIAL REGISTRATION
ClinicalTrials.gov ID, NCT04236180.
Item Type: |
Journal Article (Original Article) |
|---|---|
Division/Institute: |
04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Paediatric Medicine > Notfallzentrum für Kinder und Jugendliche 04 Faculty of Medicine > Department of Gynaecology, Paediatrics and Endocrinology (DFKE) > Clinic of Paediatric Medicine |
Subjects: |
600 Technology > 610 Medicine & health |
ISSN: |
2632-3524 |
Publisher: |
Sage |
Language: |
English |
Submitter: |
Pubmed Import |
Date Deposited: |
13 May 2024 16:08 |
Last Modified: |
13 May 2024 20:00 |
Publisher DOI: |
10.1177/26323524241247857 |
PubMed ID: |
38737405 |
Uncontrolled Keywords: |
compassion fatigue compassion satisfaction health personnel palliative care pediatrics quality of life |
BORIS DOI: |
10.48350/196733 |
URI: |
https://boris.unibe.ch/id/eprint/196733 |
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