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Lam, Yin Ting; Papon, Jean-François; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Calmes, Doriane; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D; Emiralioglu, Nagehan; Erdem Eralp, Ela; van Gogh, Christine; Gokdemir, Yasemin; Haarman, Eric G; Harris, Amanda; Hayn, Isolde; Ismail-Koch, Hasnaa; Karadag, Bülent; Kempeneers, Céline; ... (2024). Association between upper and lower respiratory disease among patients with primary ciliary dyskinesia: an international study. ERJ Open Research, 10(2), 00932-2023. European Respiratory Society 10.1183/23120541.00932-2023
Lam, Yin Ting; Papon, Jean-François; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Caversaccio, Nathalie; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D; Emiralioglu, Nagehan; Erdem, Ela; Gogh, Christine van; Gokdemir, Yasemin; Gunaydın, Onder; Haarman, Eric G; Harris, Amanda; Hayn, Isolde; Ismail-Koch, Hasnaa; Karadag, Bulent; ... (2023). Lack of Correlation of Sinonasal and Otologic Reported Symptoms With Objective Measurements Among Patients With Primary Ciliary Dyskinesia: An International Study. Clinical and experimental otorhinolaryngology, 16(4), pp. 407-412. Korean Society of Otorhinolaryngology-Head and Neck Surgery 10.21053/ceo.2023.01130
Goutaki, Myrofora; Lam, Yin Ting; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Caversaccio, Nathalie; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D; Emiralioglu, Nagehan; Erdem, Ela; van Gogh, Christine; Gunaydin, Onder; Haarman, Eric G; Harris, Amanda; Hayn, Isolde; Ismail-Koch, Hasnaa; Karadag, Bulent; Kempeneers, Céline; ... (2023). Characteristics of Otologic Disease Among Patients With Primary Ciliary Dyskinesia. JAMA otolaryngology - head & neck surgery, 149(7), pp. 587-596. American Medical Association 10.1001/jamaoto.2023.0841
Lam, Yin Ting; Papon, Jean-François; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Boon, Mieke; Burgess, Andrea; Crowley, Suzanne; Dheyauldeen, Sinan Ahmed D; Emiralioglu, Nagehan; Erdem Eralp, Ela; van Gogh, Christine; Gokdemir, Yasemin; Gunaydın, Onder; Haarman, Eric G; Harris, Amanda; Hayn, Isolde; Ismail-Koch, Hasnaa; Karadag, Bülent; Kempeneers, Céline; ... (2023). Sinonasal disease among patients with primary ciliary dyskinesia: an international study. ERJ Open Research, 9(3), 00701-2022. European Respiratory Society 10.1183/23120541.00701-2022
Goutaki, Myrofora; Lam, Yin Ting; Alexandru, Mihaela; Anagiotos, Andreas; Armengot, Miguel; Bequignon, Emilie; Boon, Mieke; Burgess, Andrea; Coste, Andre; Emiralioglu, Nagehan; Erdem, Ela; Haarman, Eric G; Harris, Amanda; Hool, Sara-Lynn; Karadag, Bulent; Kim, Sookyung; Latzin, Philipp; Lorent, Natalie; Ozcelik, Ugur; Reula, Ana; ... (2021). Study protocol: the ear-nose-throat (ENT) prospective international cohort of patients with primary ciliary dyskinesia (EPIC-PCD). BMJ open, 11(10), e051433. BMJ Publishing Group 10.1136/bmjopen-2021-051433
Pedersen, Eva S.L.; Collaud, Eugénie N.R.; Mozun, Rebeca; Ardura-Garcia, Cristina; Lam, Yin Ting; Harris, Amanda; Lucas, Jane S; Copeland, Fiona; Manion, Michele; Rindlisbacher, Bernhard; Silberschmidt, Hansruedi; Goutaki, Myrofora; Kuehni, Claudia E. (2021). COVID-PCD: a participatory research study on the impact of COVID-19 in people with primary ciliary dyskinesia [protocol]. ERJ Open Research, 7(1), 00843-2020. European Respiratory Society 10.1183/23120541.00843-2020
Goutaki, Myrofora; Halbeisen, Florian Samuel; Barbato, Angelo; Crowley, Suzanne; Harris, Amanda; Hirst, Robert A; Karadag, Bülent; Martinu, Vendula; Morgan, Lucy; O'Callaghan, Christopher; Ozçelik, Ugur; Scigliano, Sergio; Ucros, Santiago; Yiallouros, Panayiotis; Schulzke, Sven M; Kuehni, Claudia E (2020). Late Diagnosis of Infants with PCD and Neonatal Respiratory Distress. Journal of clinical medicine, 9(9), E2871. MDPI 10.3390/jcm9092871
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S.; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; ... (2020). Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD. ERJ Open Research, 6(1), 00237-2019. European Respiratory Society 10.1183/23120541.00237-2019
Lucas, Jane S; Gahleitner, Florian; Amorim, Adelina; Boon, Mieke; Brown, Philippa; Constant, Carolina; Cook, Simon; Crowley, Suzanne; Destouches, Damien M S; Eber, Ernst; Mussaffi, Huda; Haarman, Eric; Harris, Amanda; Koerner-Rettberg, Cordula; Kuehni, Claudia E.; Latzin, Philipp; Loebinger, Michael R; Lorent, Natalie; Maitre, Bernard; Moreno-Galdó, Antonio; ... (2019). Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials. ERJ Open Research, 5(1), 00147-2018. European Respiratory Society 10.1183/23120541.00147-2018
Halbeisen, Florian; Hogg, Claire; Alanin, Mikkel C.; Bukowy-Bieryllo, Zuzanna; Dasi, Francisco; Duncan, Julie; Friend, Amanda; Goutaki, Myrofora; Jackson, Claire; Keenan, Victoria; Harris, Amanda; Hirst, Robert A.; Latzin, Philipp; Marsh, Gemma; Nielsen, Kim; Norris, Dominic; Pellicer, Daniel; Reula, Ana; Rubbo, Bruna; Rumman, Nisreen; ... (2018). Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1. BMC Proceedings, 12(Suppl 2), p. 1. BioMed Central 10.1186/s12919-018-0098-9
Behan, Laura; Dimitrov, Borislav D; Kuehni, Claudia E; Hogg, Claire; Carroll, Mary; Evans, Hazel J; Goutaki, Myrofora; Harris, Amanda; Packham, Samantha; Walker, Woolf T; Lucas, Jane S (2016). PICADAR: a diagnostic predictive tool for primary ciliary dyskinesia. European respiratory journal, 47(4), pp. 1103-1112. European Respiratory Society 10.1183/13993003.01551-2015
Jackson, Claire L; Behan, Laura; Collins, Samuel A; Goggin, Patricia M; Adam, Elizabeth C; Coles, Janice L; Evans, Hazel J; Harris, Amanda; Lackie, Peter; Packham, Samantha; Page, Anton; Thompson, James; Walker, Woolf T; Kuehni, Claudia E; Lucas, Jane S (2016). Accuracy of diagnostic testing in primary ciliary dyskinesia. European respiratory journal, 47(3), pp. 837-848. European Respiratory Society 10.1183/13993003.00749-2015
