 | Up a level |
Pedersen, Eva S. L.; Mallet, Maria Christina; Lam, Yin Ting; Bellu, Sara; Cizeau, Isabelle; Copeland, Fiona; Fernandez, Trini Lopez; Manion, Michele; Harris, Amanda L.; Lucas, Jane S.; Santamaria, Francesca; Goutaki, Myrofora; Kuehni, Claudia E. (2021). COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia. Vaccines, 9(12), p. 1496. MDPI 10.3390/vaccines9121496
Goutaki, Myrofora; Crowley, Suzanne; Dehlink, Eleonora; Gaupmann, René; Horton, Katie L; Kouis, Panayiotis; Lam, Yin Ting; Loges, Niki T; Lucas, Jane S; Roehmel, Jobst F; Shoemark, Amelia (2021). The BEAT-PCD (Better Experimental Approaches to Treat Primary Ciliary Dyskinesia) Clinical Research Collaboration [editorial]. European respiratory journal, 57(2), p. 2004601. European Respiratory Society 10.1183/13993003.04601-2020
Crowley, Suzanne; Azevedo, Inês; Boon, Mieke; Bush, Andrew; Eber, Ernst; Haarman, Eric; Karadag, Bulent; Kötz, Karsten; Leigh, Margaret; Moreno-Galdó, Antonio; Mussaffi, Huda; Nielsen, Kim G; Omran, Heymut; Papon, Jean-François; Pohunek, Petr; Priftis, Kostas; Rindlisbacher, Bernhard; Santamaria, Francesca; Valiulis, Arunas; Witt, Michal; ... (2020). Access to medicines for rare diseases: beating the drum for primary ciliary dyskinesia [editorial]. ERJ Open Research, 6(3), 00377-2020. European Respiratory Society 10.1183/23120541.00377-2020
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S.; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; ... (2020). Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD. ERJ Open Research, 6(1), 00237-2019. European Respiratory Society 10.1183/23120541.00237-2019
Halbeisen, Florian S; Shoemark, Amelia; Barbato, Angelo; Boon, Mieke; Carr, Siobhan; Crowley, Suzanne; Hirst, Rob; Karadag, Bulent; Koerner-Rettberg, Cordula; Loebinger, Michael R; Lucas, Jane S; Maitre, Bernard; Mazurek, Henryk; Özçelik, Uğur; Martinů, Vendula; Schwerk, Nicolaus; Thouvenin, Guillaume; Tschanz, Stefan A.; Yiallouros, Panayiotis; Goutaki, Myrofora; ... (2019). Time trends in diagnostic testing for PCD in Europe - Research letter. European respiratory journal, 54(4), p. 1900528. European Respiratory Society 10.1183/13993003.00528-2019
Lucas, Jane S; Gahleitner, Florian; Amorim, Adelina; Boon, Mieke; Brown, Philippa; Constant, Carolina; Cook, Simon; Crowley, Suzanne; Destouches, Damien M S; Eber, Ernst; Mussaffi, Huda; Haarman, Eric; Harris, Amanda; Koerner-Rettberg, Cordula; Kuehni, Claudia E.; Latzin, Philipp; Loebinger, Michael R; Lorent, Natalie; Maitre, Bernard; Moreno-Galdó, Antonio; ... (2019). Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials. ERJ Open Research, 5(1), 00147-2018. European Respiratory Society 10.1183/23120541.00147-2018
